Dreams of a

subsequent

universal healthcare for all.

Cure SMA Bangladesh is a registered public charitable foundation with PAN Bangladesh representation. It is a distinct, apolitical, non-profit, non-sectarian entity. We have just started our journey with 7 SMA families in March 2023, and have continuously been expanding our network since then to represent SMA families and individuals across the country. We support SMA families through accurate counselling, rich resource pool, patient advocacy and various direct family support services. We are extensively working to empower SMA patients and enabling them to access existing services.

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WHAT IS SMA?

Spinal Muscular Atrophy (SMA) is a rare genetic neuromuscular condition, affecting approximately about 1 in 10,000 people. Muscle wasting and gradual mobility loss are symptoms of spinal muscular atrophy. It is brought on by degeneration of the nerve cells (motor neurons) that link the brain, spinal cord, and muscles of the body. The muscles used for movements like crawling, walking, sitting up, moving the head, and even swallowing gradually weaken and shrink (atrophied) as the connection between the nerves and muscles is interrupted.

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Be a Force

for the future

Although it is a rare disorder, 1 in 40 persons (called carriers) is estimated to carry the defective gene. There is a one in four probability that a kid born to two carriers will have SMA during every single pregnancy. No changes are experienced in sensation or the emotional ability. Intellectual activity is normal, and most SMA patients have a tendency to be especially bright and social.

A Future Where

People and Humanity

Thrive

The core aim of Cure SMA Bangladesh is to ensure accurate and timely diagnosis and treatment of all those who are or will be living in Bangladesh and have been or may be suffering SMA (Spinal Muscular Atrophy), ensuring that diagnosis of any genetic disease including SMA will also be done in Bangladesh.