About Cure SMA

Cure SMA Bangladesh is a registered public charitable foundation with PAN Bangladesh representation. It is a distinct, apolitical, non-profit, non-sectarian entity. It has started its journey with 7 SMA families in March 2023, and have continuously been expanding our network since then to represent SMA families and individuals across the country. We support SMA families through accurate counselling, rich resource pool, patient advocacy and various direct family support services. We are extensively working to empower SMA patients and enabling them to access existing services.

The foundation likely focuses on several key areas:

  1. Awareness and Education: Raising awareness about SMA within Bangladesh, educating the public and healthcare professionals about the condition, its symptoms, and available treatments.
  2. Support Services: Providing support to individuals and families affected by SMA, including emotional support, information on care options, and connecting families with resources.
  3. Advocacy: Advocating for improved healthcare services and access to treatment for SMA patients in Bangladesh. This might involve lobbying for inclusion of SMA treatments in healthcare policies and programs.
  4. Research: Supporting or conducting research initiatives aimed at better understanding SMA, improving treatment options, and ultimately finding a cure.
  5. Fundraising: Organizing fundraising events and campaigns to support the foundation’s activities and initiatives.

Organizations like Cure SMA Bangladesh Foundation play a crucial role in improving the quality of life for SMA patients and their families by providing support, raising awareness, and advocating for better healthcare services.

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What We Do

The core aim of Cure SMA Bangladesh is to ensure accurate and timely diagnosis and treatment of all those who are or will be living in Bangladesh and have been or may be suffering SMA (Spinal Muscular Atrophy), ensuring that diagnosis of any genetic disease including SMA will also be done in Bangladesh.

One of our initial key objectives is to help treat the few SMA patients identified so far in Bangladesh. Needless to say, at Cure SMA Bangladesh, everything from our funding urgencies to our daily resolutions are driven by our mission, vision, and values.

Our Mission, Vision and Values

Cure SMA Bangladesh is a registered public charitable foundation with PAN Bangladesh representation.

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We are dedicated to bringing the treatment and cure for SMA to Bangladesh, making the related healthcare available, all-encompassing, and insured for all, while creating awareness about SMA and the impact of genetic screening so that we can eventually reach to a point where there will be no genetic disease in the world.

Cure SMA Bangladesh dreams of a SMA free world and a subsequent universal healthcare for all.